Ellie’s Fund #CharityTuesday

Posted on 17th April 2012 in #charitytuesday/ cancer

My #CharityTuesday page is written today by Heather Othick who is going to introduce you to Ellie’s Fund. Please read, share the information and donate if you can. A great way to donate (without spending any additional money) would be to send them your empty babywipe packets! Sounds odd but it’s true, see below or visit the facebook page for more details.

For me this post highlights the sheer bravery of Ellie and family for choosing to fundraise to help others. I also found some of the facts quite hard-hitting; for instance, ‘Shockingly, 65% more women die from a brain tumour each year than from cervical cancer.’

I’ll now hand you over to Heather who can tell you about Ellie’s Fund in her own words. Thanks for reading and please comment to show your support. 

Ellie’s Fund – Brain Tumour Trust was set up after the death of 14 year old Ellie Othick-Bowmaker.


At just 11 years old Ellie was diagnosed with a grade 4 Glioblastoma, an aggressive brain tumour, and expected to live no more than 6 months. Ellie fought for 3 years, and during that time helped to raise over £25,000, which she donated to charities close to her heart. She inspired many people to join in. Sadly, Ellie’s battle ended in February 2010.


I always knew that the fundraising would continue. It did almost straightaway, and a few months later I was approached by Shaun Tymon and Tina Boden who now work alongside me and my husband, Jason, as Trustees.


Ellie’s Fund – Brain Tumour Trust recognises that life is turned completely upside down when you or a family member is diagnosed with a brain tumour, and whilst we would like to offer a complete support package, we are only a small charity. We decided that our efforts would be best put to supporting the brain tumour research laboratory in Leeds; the Leeds Institute for Molecular Medicine, which was opened in February 2011, and to supporting children in Yorkshire and Humberside who are going through treatment for a brain tumour, as well as working to increase brain tumour awareness. If you would like to know more about what we do our website address is www.elliesfund.com


Since 2010 Ellie’s Fund has raised over £60 000, supported 19 children and sent £16,500 to the research lab and £1,900 towards the cost of refurbishing the children’s neurosurgical ward at Leeds General Infirmary.

Did you know that:

  • Brain tumours are the most common solid tumour found in children and they have overtaken leukaemia as the biggest cancer killer of children in the UK
  • There are 16 000 new cases diagnosed every year. Of these, 85% will succumb within 5 years of diagnosis
  • Shockingly, 65% more women die from a brain tumour each year than from cervical cancer.
  • 20% of all cancers now spread to the brain
  • More men under the age of 45 and women under the age of 35 die from a brain tumour than any other cancer
  • While the five-year survival rate for many cancers is over 50% and rising to over 90% for some cancers, for brain tumours, the five year survival rate for men is 14.1% and women is now 13.8%
  • Brain tumour research receives less than 1% (0.7%) of cancer research spending in the UK
  • Adults and children who do survive are left with side effects that affect them for the rest of their lives.
  • ‘We’, the brain tumour community, are asking MPs to discuss brain tumour funding in the House of Commons.
  • We have until June to collect 100 000 signatures, and we might stand a chance of making a start to changing these statistics. So please do sign the petition and ask all your family and friends to as well. Thank you. Here’s the link: http://epetitions.direct.gov.uk/petitions/17419

Ellie’s Fund – Brain Tumour Trust baby wipe packet collection.
When I found this recycling initiative that involves parents, and raises money, as well as helping the environment, it made me think that this could be a way of raising a lot of awareness about this deadly disease to the people who need to be most aware – parents.

Here’s how it works:


1) Collect your empty baby wipe packets (any brand, but just baby wipe packets) and wrap them in a thick plastic bag or box. Fewer, bigger parcels are better; so if you and your friends/nursery are collecting, please think about sending one parcel between you. This is an ongoing fundraiser, there is no end date.


2) When you have a parcel ready (suggested minimum 25 packets, no maximum) e-mail info@elliesfund.com and we will email you a freepost postage label. (Ellie’s Fund is a small charity, this will save us postage costs.) Drop the parcel at your local post office as soon as possible.


3) Each postage label can only be used once so if you need more just e-mail again!


The packets go directly to a recycling centre who credit Ellie’s Fund Brain Tumour Trust with 2 pence for each packet received. The baby wipe packets are made into other items such as plastic bibs, dustbins and watering cans.
If you would like to send your packets to us we will gladly deal with them for you, please send them to Ellie’s Fund BTT, PO Box 473, Scarborough, North Yorkshire, YO11 9DQ.


Further details and downloadable posters can be found at www.elliesfund.com/events-calendar 

Heather Othick
Ellie’s Mum, founder & Chair of the Trustees
www.elliesfund.com
Facebook group: Ellie’s Fund – Brain Tumour Trust
Twitter: @elliesfundinfo

Registered charity number 1138359

Currently of every £100 raised for research into cancer, brain tumour research receives just 70 pence. We’re asking MPs to discuss brain tumour funding in the House of Commons. Would you sign the petition to support this please? We have until June to collect 100 000 signatures http://epetitions.direct.gov.uk/petitions/17419

PO Box 473
Scarborough
North Yorkshire
YO11 9DQ

Donate to Ellie’s Fund via JustTextGiving: text ELFU01 £2/£5/£10 to 70070.
Texts are charged at your normal rate.

Proud member of Brain Tumour Research
Registered charity number 1093411
Funding the fight.

Thanks for reading – please comment to show your support. 

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